I'm new to this forum! I was diagnosed with IIH on the November 10th with an opening pressure of 30. I was immediately put on 1000mg Diamox per day and two weeks ago I found out I'm now pregnant, about 6 weeks along. I've been researching wether Diamox is safe to take during pregnancy or not and I read many different opinions. My neuro told me that they performed a study in 2013 and the rate of miscarriages and birth defects were the same in the women that were on Diamox and the ones that weren't. I know I should just trust his word, but I can't help this fear. I really want my baby to be healthy and I read a lot of women that started taking it when they were out of the first trimester as the risk for limb deformity decreases significantly once the second trimester starts.
I would really like to have your opinion/experience if you are or have been on Diamox during pregnancy or know someone who has.
Thank you so much!
My Neuro-ophthalmologist keeps insisting my headaches are unrelated to my IIH. I was taken off Topamax Friday and put on a blood pressure medication (even though I do not have high blood pressure) to help control the headaches. I’m starting to feel like a guinea pig with all the meds they are testing on me. Should I get a second opinion?
Is it normal to have back pain with this. I never know if it’s just my back hurting or from this crazy disorder