Pseudotumor Cerebri Support Group

Pseudotumor cerebri (PTC) is a neurological disorder that is characterized by increased intracranial pressure, in the absence of a tumor or other diseases affecting the brain or its lining. Diagnosis requires brain scans and lumbar puncture. Characteristic symptoms are headache, transient visual obscurations or transient visual loss in one or both eyes usually lasting...

729 Members
8,012 Posts
0 Online
Brain & Nervous System
/ Pseudotumor Cerebri Support Group

Insomnia

deleted_user
deleted_user
For the past two weeks I have been having insomnia, it's really bothersome since I have been feeling very bad for the last two weeks as well, I haven't had a bad flareup with IH in a good while. But being in pain and not able to sleep is really bad,I know it is being to affect my work habits, because when I'm in pain I'm distracted and don't want to do anything but research this pestilential disease. I'm feeling awful again....Lord please Help me!!
deleted_user
deleted_user
I was going through this too a few months ago and I know just how draining it can be! Sometimes the only thing that helps this condition is 12 + hours of sleep. I talked to my doctor about this because my mental health had started to deteriorate so bad, and he told me to take Benadryl before bedtime. It allowed me to get drowsy enough to shut my brain off and since that first night my sleeping schedule has been better.
Cath278
Cath278
Hi. I have been a poor sleeper for a number of years , worse, of course ,since the IIH.
This time last year, my neuro put me on 50mgs of amitriptyline and I am now sleeping much better. I take it about 2 hours before bedtime and it works, 4 out of the 7 nights a week. Its so good to get a few nights sleep at least. mention it your dr or neuro. Its a common drug prescribed for IIh. Cath.
deleted_user
deleted_user
I have trouble getting into a regular sleeping routine. i tend to be a night owl but I am a single mom of a very active 5 year old boy, therefore I am up early every day also. I have to be careful because if I don't get at least 6 or 7 hours of sleep a night, I will have terrible headaches the next day.
Also, it seems like about once a month I need to just sleep for an entire day or two if possible, and I feel better!
Posts You May Be Interested In
  • Ilovethekitties

    OT My last day with USPS will be 2-27-15

    Posted by: Ilovethekitties
    Last Reply: GiphyOlivia
    21
    I gave my 2 week notice last Friday 13th. Now to join you fine people in a life of leisure and nothing else to do but to look out for myself....is it just me or does that sound pretty boring? My goal was to live to retire and I guess having to take early retirement because of health reasons wasn't exactly the way I had planned things. I just can't stay in that building that is reeking mildew...
  • Rizen

    Walk a Day

    Posted by: Rizen
    Last Reply: mujicaptsd
    2697
    I'm trying to exercise daily. I was doing fairly well until I sprained my ankle 2 weeks ago but now I'm getting back on the horse. Today I walked over a mile with my arm weights that are about 22lbs total. I was out of shape and it was hard on my arms. I also did my 30 situps. I'm also going to drink a lot of water and try to eat healthy. I do tend to have a sweet tooth but I'm cutting...