I have been losing hair, but my neuro said that is a side effect of diamox. Lovely, as it also makes me break out, so I call it the "pretty pill", especially since it also makes it hard to lose weight.

I would go a little shorter, because that adds to the fullness.

Whenever we have life changes, we women tend to change our hairstyles, LOL.

Hope you are well, Ella.

i just cut about 10 ish inches from my hair... everyone kept telling me how much lighter my head would feel.... it dosen't haha .

i cut it because at first on diamox my hair grew like crazy then it just stopped growing and started to fall out faster then it was ( but i got tons of hair tons!) so i cut it thinking it would help and my hair stopped falling out as much. but it didn't make my head feel lighter at all

Strange ladies, that I still have a lot of the symptoms you all have , but I am not taking Diamox any more!
My hair is falling out as well. When I take a shower and wash it, its all over my hands as I wash.I know its normal to lose some hair but this us ridiculous! Good job I have a"full" head of hair.

But, my hairdresser said last month , that it had improved in its condition for the first time since I got sick. A line? Maybe , but I am going to believe her! Cath.

My hair has been falling out well before taking Diamox and before diagnosis. But my symptoms could be traced back to almost 10 years now and the hair loss about 7 years. I though it was due to anesthesia from surgeries, but I haven't had any in over 5 years and it is still falling out! Add this to the list of "yep, I got that symptom too."

So that makes me wonder. Do any of you have the same speech problems. Transposing words when talking, not being able to pronounce words that would be simple like mission, forgetting the word or name of something, ie window, apple; simple words no longer look like they are spelled properly? These have NEVER been a problem for me until about 5 years ago...

oops, as far as cutting it... I have cut my short so that it doesn't look thin, but it still falls out by the handfull.

Pamela, if you type in Speech Problems to the search bar, you see a post that I had , awhile back about speech problems.
Its still the same, But I know just how you feel. Yet, another symptom! Cath.

about speech.... i've had speech problems all my life... i read just fine but spelling isn't my friend i'm a lot better now then i used to be infact which isn't saying much.

as for mushing words together i do that a lot or just forget what word i want. but as far as saying words it's hard for me to gagde i grew up going to speech therapy because i didn't say words right untill i was about 12 when i just stopped going

I have seizures and have aphasia during/after seizures. Everything gets all muddled. It hadn't occurred to me it could be the IIH. One more thing to add to the long list, I guess.

http://en.wikipedia.org/wiki/Aphasia

My hair is falling out too! I just thought it had to do with stress, but maybe it is related to IIH or the Diamox. The other thing I've noticed is that my hair is much drier since taking D. I used to have to wash it ever single day or it looked really oily. Now I can go a couple of days in between.

Wow.....did not know I wasn't the only one with this!

I also have where u know what u want to say, but u forget something so simple our that I can't form the words...

So I guess I am going 2 concur with the rest..."yep...add it to the list.

So, I'm pretty sure I am going to cut my hair tomorrow, if not sometime really soon, but I'm not on diamox so it can't be from that.

well if you were all old farts like me I would say it was an age thing. I am so lucky that I am not grey, it just falls out before it gets grey, LOL,,,,,,,,