Prolactinoma Support Group

A prolactinoma is a benign tumor of the pituitary gland that produces a hormone called prolactin. It is the most common type of pituitary tumor. Symptoms of prolactinoma are caused by too much prolactin in the blood or by pressure of the tumor on surrounding tissues. Prolactin stimulates the breast to produce milk during pregnancy. After delivery of the baby, a mother's...

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Endocrine System
/ Prolactinoma Support Group

I hate my pit tumor!

deleted_user
deleted_user
HI.. I have suffered with my tumor for 11 years. I live in a small town, and I have not met anyone who understood me or could explain the things I feel. I don't care for my doctor and am looking for a new one.

Anyway.. would love to chat with someone who understand what this tumor does to the body..

What is your story? Is losing weight hard? Are you tired all the time?????????????
help me.. please..
deleted_user
deleted_user
Pituitary adenoma will wear you out. I have gynecomastia and practically no energy. Suicidal depression is a hallmark for me. Meds work for about a day at the time. If get too much Dostinex, I get paranoid and feel "throttled". I hate the feeling. It's hard to get a handle on the depression aspect, it's unpredicatble.
deleted_user
deleted_user
I first learned of my Pit Tumor in 1978.. it was invasive and secreting.. prolactin shot up over 1000 prior to surgery.. they were unable to get all of the tumor cells, I have been on Parlodel since 1978.. different mgs. depending on the doctor.. My Prolactin level went into the negative range which was just as bad as having it rise.
As for my other medical maddness.. I have had my share of typicl Endocrine issues... over the years, I have learned a great deal about the endo system, spoken to doctors and other patients.. I have come to the conclusion that my A-Fib (heart issue), visual problems, Fibromyalgia, and weight issues are all meshed together into a bundle.
Over the years, I have undergone MEN-1 testing at NIH, had many MRI studies and a host of Visual tests that relate to many endo issues.
I take it in stride and try to learn as much as possible to better understand what I might face down the road.
It has also been interesting that both of my parents have been diagnosed with Endocrine -related medical issues as well. Their particular cases did not appear until they were in their late 60's (Mom) and (Dad) in his 80's. Who knows about the body and how it all relates.
The only thing I can offer is to keep your mind open, learn as much as you can, call your local medical resource center and get to a physician who is a Neuro Endocrinologist.. also make an appointment with an Endocrine Opthamologist.
These doctors are specially trained to better understand the neuro and visual issues in relationship to the endocrine system.
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