I'm grateful to have found this support group and all of you. I've been on prednisone for a year, having started at 60 mg daily in Aug 2009 to treat an inflammatory condition called temporal arteritis. I was down to 8 mg in June, but had a flare so went back up to 20 mg. I'm down again to 10 mg. and have at least another year to go. The worst side effects for me are fatigue, mental fogginess, depression, anxiety, and loneliness because no one I know really understands how I feel and what it's like inside my head. However, I've managed to continue to look almost normal except for a little rounding in my face and thinner legs. The most helpful thing I found right away is a book called "Coping with Prednisone". It's available as an inexpensive paperback on Amazon. The woman who wrote it describes everything we face, how she got through it and how she helped to minimize some side effects like bloating and weight gain. My husband read it too so has been as supportive as he can (although it's often hard with my mood swings). I've followed the diet she recommended - very low salt, low sugar and low fat - and I've avoided most of the bloat and lost a little weight. (Prednisone made my blood sugar skyrocket so I had to follow a diabetic diet anyway.) I created the diet by writing down the amount of salt, sugar and fat in everything I ate for 3 weeks. I found the amounts on the USDA National Nutrient Database website. By then, I had a good list of everything I could eat - bland and boring - but I've stuck with it. I cheat a little when we're out but not very often or it wouldn't work. I don't notice the blandness any more, but I do miss pizza!! I would love to hear from any of you who have been bothered by fatigue as a side effect and how you've coped with it.
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