This is my first summer dealing with DM, and its been hell..I thought I was doing everything my dr advised me to do when I go out. Well I attended a reunion 3 weeks ago, and due to being out the indirect heat caused a flare. I am back on 20mg of Predisone and taking 5 Imuran pills to control the flare ups. So now I am terrified of going outside, because I am afraid I will never get better...PLEASE HELP!
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HeyaI have DM (2005). Strength is such that I cannot use public toilets even ADA toilets. Also cant use normal chairs, they are too low. Low beds I cant handle. I also have calcinosis and frequently I will have a joint flare which pretty much incapacitates the limb. Soon I am moving from NY to IL to be closer to parents. I am having trouble figuring out how to get my body across that space. How...