You guys have seen my other posts! I am getting paranoid. I am on 40mg of prednisone and 200 mg of plaqenil and finishing up testing for a possible polymyositis diagnosis (Dr is pretty sure that is what I have) I also have lupus. I start taking the 40mg and my lupus symptoms got 90% better in 2 weeks. joints feel great. brain fog better, raynauds gone, no blisters, poly symptoms coming around slower. leg strength seems better, shortness of breath better, reflux better, tremor still on and off (had this before steroids) upper body not coming along so quickly.......Here is the downer........started my "cycle" and joint pain in my knees and feet came back...ok, not 100 percent but about 50%, lots of fatigue, no blisters.....best female cycle flare up I have had in a while so I should be thank full for that but I though the steroids was the kryptanite......anyone else had similar ups and downs on steroids? I know it did not help all of you. But those it did help, did it wax and wayne? Need reassurance. Hope is a deadly thing! I can handle the pain and even resign myself to a certain life but to hope..............also, steroids have caught up to me regarding sleep. even with sleep aid I can not sleep more than 4 hrs and I KNOW lack of rest makes my lupus BAD.....this is a vicious circle.......I will post on Lupus board to for help but need my Poly/Derm friends too!
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