Okay, so... apparently I was being young and naive and thought that I didnt have anything to worry about and that I didn't have a very severe case of DM or that mine would just up and go away forever. apparently that is not the case. I have recently written about the gottrons on my knuckles.. it has gotten a LOT worse and is beginning to look like the dreadful pictures we see on the internet. not only that is now on my elbows... ive NEVER had it on my elbows.. of course.. ive only had gottrons once before this. My doctor put me back up on 10 methotrexate tablets every 7 days instead of every 10 days. we are tryin to stay off the prednisone. my fingers and elbows itch SOO bad. I never thought it would be this bad.... I don't really have any muscular symptoms which I should be thankful for... but this constant itchy and temptation to scratch is about more than I can handle.. My doctor told me to use benedryl and steroid cream.... not really helping anymore.... :(
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HeyaI have DM (2005). Strength is such that I cannot use public toilets even ADA toilets. Also cant use normal chairs, they are too low. Low beds I cant handle. I also have calcinosis and frequently I will have a joint flare which pretty much incapacitates the limb. Soon I am moving from NY to IL to be closer to parents. I am having trouble figuring out how to get my body across that space. How...
theatre and I are there already. I'm having a very berry tea with crackers, cheese and cherry tomatoes and she's having a joint with some beer and we're both on really comfy recliners on thick pile carpet. we need some help with the decor if anyone is around??