New to the board but not to the disease. I am 31 and am on my second round with Dermatomyositis. I was 1st DX'ed when I was almost 10 after being misdiagnosed for a year and a half. I went into remission when I was 14 but last fall I started to feel pains and weakness I had shut out of my mind. Found myself a Rheumatologist and was told my CPK levels were elevated and it looked like the evil little monster woke up. I was put on Prednisone and then on to Methotrexate which at first was lowering my CPK levels but then after getting it back down into the 400's it spiked right back up and the past month I just get worse and worse. I just saw my doctor yesterday and he wants to stop the Methotrexate and switch me to Imuran. Has anyone been on this med. before? I know everyone is different but what kind of reaction may I see. I have read the side effects and they all sound so lovely =) but I haven't found any personal stories about people who have Dermatomyositis and have been on this med. I would appreciate any advice and/or insight.
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