Had a appt with nuerologist on july 14 and he sent me straight to the hospital cause i was having diff. swallowing. They had me N.P.O. for two weeks and put me on ivig treatments plus high amounts of steriods. Unfortuantly the ivig didn't seem to have the effects they wanted to see and after two failed swallow studies i had to have a feeding tube put in. two weeks in the hospital followed by two weeks in a skilled nursing facility and then went to a rehab hospital where I had been till now. I'm doing out patient therapy and have been on imuran for about a month along with 60mg of predesone. still can't stand on my own and my arms are still very weak as I have lost about 90 lbs of muscle since jan. I had another swallow study and while I showed improvement they said i still shouldn't be on a regular diet. all in all spirits are high and not really having any side effects from the meds. getting a little stronger everyday and hope to get back to the land of the working again soon. God bless everyone who has to endure these diseases and remember to press on and don't give up.
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