Hate to tell you this, but the possability is 50/50. In some families, all the kids have it, and in some none have it.

There was a news report that out of seven kids, 3 had it while 4 didn't.

I think your doctors can answer you, but you have to ask the right doctor. Find a geneticist. He/She can run the test.

I am not in a position to have a family right now, but I was given two options to have a non-PKD family.
1) Have normal conception with genetic testing on fetus for the PKD genes. Abort if positive.
2) Fertilize eggs in a test tube and pick the non-PKD ones.

I don't understand why your doctors say its rare. 0.002 may be a small amount but not when its out of 6 billion people (12 million+ PKDers worldwide).

I'm not saying you should have an abortion!

Lots of people have had several kids knowing they have PKD.

All of us have to live our lives and not let it get to us.

You may have to just change a few things like eat healthier and exercise more but you were going to do that anyways, right?!

My husband and his sister both had PKD, from his mother. He died in July after 10 yrs with a transplanted kidney. I was his donor. He has only one son and he has PKD (previous relationship) I would advise you to adopt. If you already have so many problems why would you want to pass them on, even if the odds were less. When my husband found out he already had his child. It is not rare to pass on PKD, the odds are 50/50. My husband died at 51 even with a transplant. Alot of children are out there that need good homes and loving parents. Think about it. On the other hand I have read some very good studies are going on right now. So when your child grows up there may be a cure! Best of luck with your decision.

It is 50 /50 but the severity of the disease varies ,you could have a child who has it but is badly affected ...But with the medical help available it would be possible to have a healthy child ,but when you think about it ,my healthy parent passed stuff on to me that he did know was in his family ,we all get things passed on to us and deal with it if its a problem ,like diabetes and breast cancer ...people dont not have kids because there is diabetes or cancer in the family ...why PKD... not all PKDs die young ,not all are greatly affected ,but a high percentage of cancer sufferers die so maybe every one with the cancer gean should not have kids...I think it is important to live your life ,if you are healthy enough to carry a baby go for itwith help

I was born with it and my sister wasnt. Im 18 and very healthy. I got regular check ups every year to monitor it and if taken care of properly your baby can live thier whole life without having a problem.
Everything will turn out fine!

hi i hade 2 children also with pkd.i had pkd when i was pregnant.but i must say that the doctors didnt look after me properly they never kept my bp down and i was quite porly.but with the rite dr u can and will get through your pregnancy fine just dont be shy in telling them anything because they mite not ask you. i have it from my mothers side also. as i have only just been told that 2 of the children have it as we new about the other 2 i was worried as they have large cysts i have a really good renal nurse who tells you anything u need. so i asked her about the kids and what affects it will have on them and she said that as long as thier bloodpressure is kept at a proper level then they should be ok. because usually they dont realise that they have it till thier teens so to treat them normal.as for feeling guilty for giving it to the kids. i dont really as there is progress every day towards pkd and by the time they are my age things will be alot different 4 them. just make shore they keep your bloodpressure down