PKD and mental health
Hello all. I'm looking to connect with others for support in helping my husband manage issues around PKD and deteriorating health. We have been lucky to be rather symptom free, but more recently things have started to decline. He found that his function is down to 20% and we are looking at likely needing dialysis or transplant in the next year. Since this time he has felt more fatigued and "foggy." He acknowledges fighting depression due to worry around being able to continue to provide financially while being on dialysis. There is also issue around losing weight to be an appropriate BMI to do a transplant if possible. I have encourgaed him to go to counseling but he stated this will cause him greater anxiety. I feel so helpless in this moment. I can do my best to adjust my spending to ease money fears or support healthy eating, but I know there has to be so much more grief and worry that goes along with this. I fear for him and selfishly for myself. I'm afraid of losing my husband eventually and of losing the version of him that he is now. I struggle myself with mental stability and fear a life without him. Any feedback or support is welcomed. TIA
Hello everyone! I'm new here and don't know exactly how these posts work, but I'm here to reach out for advice...I do not have PKD but my boyfriend was diagnosed months ago with "the worst possible case" of this disease...he's been sick for well over a year before he was diagnosed. for all of you who have it..I'm sure you can all sympathize with him. He's 29 years old. His father, aunt, and uncle...
Hi all,I wrote here about 6 months ago...i was very anxious and scared , diagnosed with pkd accidently (no symptoms)... my father was a very complicated case , died 2 years ago in 3rd transplant surgery(!). He had very big kidneys and very high blood pressure from young age.I feel better now mentally and Im optimistic.I'm 28.5 recently did an mri , my right kidney looks better than the left...
Hi Guys - not sure if you have read this before, but have posted about this on this forum earlier.The Artifical Kidney Project is all set to get into clinical in human trials early 2018! if all goes according to plan the device can be launched as early as 2020.I know this information is a big ray of hope for me. Initially, I didn't want to pin my hopes up on this project to be disappointed but...
So I will either have a egg donor or PGD done for my second pregnancy. Can anyone share with me their pregnancy experience? Does Kidney function decline post pregnancy. I am 30 years old, good kidney functions with Mild hypertension.I have a child who is 3 years old and had an uneventful pregnancy and no loss in Kidney function although I was 3 years younger.