Hello all. I'm looking to connect with others for support in helping my husband manage issues around PKD and deteriorating health. We have been lucky to be rather symptom free, but more recently things have started to decline. He found that his function is down to 20% and we are looking at likely needing dialysis or transplant in the next year. Since this time he has felt more fatigued and "foggy." He acknowledges fighting depression due to worry around being able to continue to provide financially while being on dialysis. There is also issue around losing weight to be an appropriate BMI to do a transplant if possible. I have encourgaed him to go to counseling but he stated this will cause him greater anxiety. I feel so helpless in this moment. I can do my best to adjust my spending to ease money fears or support healthy eating, but I know there has to be so much more grief and worry that goes along with this. I fear for him and selfishly for myself. I'm afraid of losing my husband eventually and of losing the version of him that he is now. I struggle myself with mental stability and fear a life without him. Any feedback or support is welcomed. TIA
Hi every body I am new. I am in PKD stage 4 I feel tried alot. I need to know how to get some energy?
Hi everyone, I Am brand new to this. I was diagnosed with PKD in June of 2007, I will make this short the best I can as a lot has happened. I was very lucky to land the best of the best doctors at UCI Medical Center in California. Over the years I had over 400 cystic tumors removed which also had spread to my liver and uterus. After several operations unfortunately I had to have a hysterectomy...