New to the group
Hello everyone. I am Travis. I have known about having PKD for around five years or so. I was first told i wouldn't have any worries till I was in my 80's or so. I got admitted to the hospital a year ago due to my kidney disease. Come to find out both of my kidneys are the size of regulation football's. I don't know much about this disease besides what I can figure out online. At first I got all my help from my aunt who had the same disease and ended her fight with PKD about 6 months ago and now I am back to trying to get help on understanding all the effects of PKD. My dad also had it and he passed away 9 years ago. I am 39 years old and at times now I feel like I am 80. Just over the last year this disease has taken such a toll on my body and my life. My lower back gives me a constant reminder that I have this disease. Seems like everything gets harder for me to do as time goes by. I lost my job due to my health. I was a heavy equipment operator and all the bouncing around and all got the best of me and they said my health wasn't good enough to work there anymore. Once that happened thing's just started falling from there. Depression kicked in on me extremely bad. Not sure if that is a side effect of PKD or its just the fact that life seemed to be heading down a short dead end road. Im not the type to complain on anything but its pretty much every day I'm in pain. Some nights it takes me about a hour just to get comfortable enough to sleep. I have learned the most important thing about having PKD is. After losing pretty much everything I have due to not being able to work and trying to see the doctor's my family has stood next to me on the rough and changing road that my life has become. Family support is the first thing anyone needs that has this disease. I have put my family through hell and back with mood changes and everything else that has been thrown at me. If it wasn't for them I wouldn't have the fight in me that I still have and I am so thankful for them
I'm reaching out to hear what others experienced when they were first diagnosed. I have been having problems with episodic hypertension for a few years now. My bp is typically 80s/40s. During an episode, I get incredibly weak and bp shoots up to 130s/90s. All of my problems started with urine retention that led to self-cathing for a week. Finally, with enough complaining of right kidney pain my...
hi everyone, new to the group. I'm 30 years old and have known I had PKD for a long time. In the past five years I've had a kidney infection, multiple UTIs and one cyst infection that required hospitalization.about 7 days ago I had severe pain in my kidney and stomach regions that went away after two days. Then starting Sunday I noticed that my urine had blood in it. The color is a really light...
hello im 25 and we just recently found out my baby has PKD during my 23 weeks ultrasound with no amniotic fluid.Baby's heartbeat and movements are good. Me and my husband's sides doesnt have any history of PKD.Does anyone have the same experience? I am hoping and praying for any chances of survival.Any advice? or treatment to help my baby survive? Hoping someone could respond.Badly needing...
Anybody on antidepressants? Which one is okay for PKD pateints to use? Thanks!