New to the group
Hello everyone. I am Travis. I have known about having PKD for around five years or so. I was first told i wouldn't have any worries till I was in my 80's or so. I got admitted to the hospital a year ago due to my kidney disease. Come to find out both of my kidneys are the size of regulation football's. I don't know much about this disease besides what I can figure out online. At first I got all my help from my aunt who had the same disease and ended her fight with PKD about 6 months ago and now I am back to trying to get help on understanding all the effects of PKD. My dad also had it and he passed away 9 years ago. I am 39 years old and at times now I feel like I am 80. Just over the last year this disease has taken such a toll on my body and my life. My lower back gives me a constant reminder that I have this disease. Seems like everything gets harder for me to do as time goes by. I lost my job due to my health. I was a heavy equipment operator and all the bouncing around and all got the best of me and they said my health wasn't good enough to work there anymore. Once that happened thing's just started falling from there. Depression kicked in on me extremely bad. Not sure if that is a side effect of PKD or its just the fact that life seemed to be heading down a short dead end road. Im not the type to complain on anything but its pretty much every day I'm in pain. Some nights it takes me about a hour just to get comfortable enough to sleep. I have learned the most important thing about having PKD is. After losing pretty much everything I have due to not being able to work and trying to see the doctor's my family has stood next to me on the rough and changing road that my life has become. Family support is the first thing anyone needs that has this disease. I have put my family through hell and back with mood changes and everything else that has been thrown at me. If it wasn't for them I wouldn't have the fight in me that I still have and I am so thankful for them
Just looking to get others thoughts on this one. I gave up Jiu Jitsu on the advice of a consultant when first diagnosed. Mentioned it at my last check up and the new consultant felt the health benefits of doing it and keeping fit outway the downside whilst kidneys aren't huge (19cm). So gone back but going stready.Any others had conflicting advice regarding activities?
I have a friend who is 79 years old and was diagnosed with PKD when she was in her 30s. She was diagnosed with kidney failure in one kidney two years go and this past December found herself in the ER with massive swelling and end stage renal failure. She is been having dialysis since just a few days before Christmas 2016. Her overall kidney function was 5% then and is 5% now. Just two weeks ago...
Hello everyone! I'm new here and don't know exactly how these posts work, but I'm here to reach out for advice...I do not have PKD but my boyfriend was diagnosed months ago with "the worst possible case" of this disease...he's been sick for well over a year before he was diagnosed. for all of you who have it..I'm sure you can all sympathize with him. He's 29 years old. His father, aunt, and uncle...
I realise our am lucky only to have PKD. There are a lot of families dealing with worse diseases and illness. My post is really vain and I feel like a phony posting on here. I am 37, I still have good renal function but my kidneys are quite huge now. Over the past 8 weeks I have been asked on several occasions about when my baby is due. I find people staring at my abdomen quite a lot. It is...