Polycystic Kidney Disease (PKD) Support Group

Polycystic kidney disease (PKD) is a progressive, genetic disorder of the kidneys. It occurs in humans and other organisms. PKD is characterised by the presence of multiple cysts (polycystic) in both kidneys. The disease can also damage the liver, pancreas and rarely the heart and brain.

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my unborn baby with pkd

hello im 25 and  we just recently found out my baby has PKD during my 23 weeks ultrasound with no amniotic fluid.


Baby's heartbeat and movements are good. Me and my husband's sides doesnt have any history of PKD.


Does anyone have the same experience? I am hoping and praying for any chances of survival.



Any advice? or treatment to help my baby survive? Hoping someone could respond.


Badly needing support.



Regards,


Pearl


from Philippines

Replies

Chewitt
Chewitt

Hi Pearl,
This must be an extremely worrying time for you. I don't recall anyone posting here with a similar situation before, though there has recently been a post from a mother with a child who has PKD. There are so many variables involved that it's impossible to tell you what will happen but I know that babies do survive with PKD, including ARPKD, so keep hoping and we will hope with you.
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