My name is Craig.I am 51 and in stage 5 due to ADPKD. I have began the transplant steps. Unfortunately I am O negative.
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Just looking to get others thoughts on this one. I gave up Jiu Jitsu on the advice of a consultant when first diagnosed. Mentioned it at my last check up and the new consultant felt the health benefits of doing it and keeping fit outway the downside whilst kidneys aren't huge (19cm). So gone back but going stready.Any others had conflicting advice regarding activities?
I have a friend who is 79 years old and was diagnosed with PKD when she was in her 30s. She was diagnosed with kidney failure in one kidney two years go and this past December found herself in the ER with massive swelling and end stage renal failure. She is been having dialysis since just a few days before Christmas 2016. Her overall kidney function was 5% then and is 5% now. Just two weeks ago...
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