Polycystic Kidney Disease (PKD) Support Group

Polycystic kidney disease (PKD) is a progressive, genetic disorder of the kidneys. It occurs in humans and other organisms. PKD is characterised by the presence of multiple cysts (polycystic) in both kidneys. The disease can also damage the liver, pancreas and rarely the heart and brain.

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Hi

My name is Craig.I am 51 and in stage 5 due to ADPKD. I have began the transplant steps. Unfortunately I am O negative. 

Replies

Chewitt
Chewitt

Hi Craig,

Welcome to the group. What is your eGfr? I am at stage 4 (update on eGfr this week) and have been told I will probably need dialysis/transplant within 12-18 months. I haven't started down that path yet and it's something I need to get up to speed with. Are you hoping to find a living donor? I will not be able to do this because I will need a dual liver/kidney transplant. What is your health like generally and how are you feeling?

Look forward to hearing more from you.

Chewitt
enigmaticloner
enigmaticloner

Hello Craig, welcome to the group.
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