I have an 8 yr old daughter born we believe with ADPKD. She was diagnosed at age 3 due to UTI's. Doesnt run on either my side or exhusband side. She does have hypertension but is on Enapril 3cc twice daily and on Celexa to TRY to make her hungry. In 1 yr she has only gained 1/2 lb and grown 1/2 inch. She weighs 49 lbs and is 50 1/2 inches tall. We have seen therapists after therapists for eating disorders and nutritionists to evaluate intake. She drinks Boost Plus mixed with Pedisure at least 1-3 cans a day. I have tried just about everything. Even her school allows her to "graze" all day at school. Can anyone advise me or help me. I cant take much more of her not eating. It seems like I run a restuarant at my house everyday. I could be feeding Africa with what I throw away.
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