
Polycystic Kidney Disease (PKD) Support Group
Polycystic kidney disease (PKD) is a progressive, genetic disorder of the kidneys. It occurs in humans and other organisms. PKD is characterised by the presence of multiple cysts (polycystic) in both kidneys. The disease can also damage the liver, pancreas and rarely the heart and brain.

deleted_user
Does anyone have problems with eating with PKD? I have an 8 yr old daughter dx at age 3 due to UTI's. She has hypertension and is on Enapril 3cc twice daily. She has only gained 1/2 lb in a year and grown 1/2 inch. Based on testing her kidney function is still "normal range". She has ADPKD and no one on my side or my ex husbands side has an kidney issues. How do I get her to eat more? She is on Celexa to try to make her hungry and drinks pedisue and boost plus but food issues are HUGE. We have seen many many therapists and left them stumped basically and now have seen 3 different nutritionists. Can anyone help me out there? I am getting so frustrated with her not eating. She picks out her own food at store or gives me a list, I make her whatever she requests at this point to make sure she is getting something. Her school allows her to "graze" all day at school. We now have her once a week "helping" the school nurse at lunchtime so we know at least 1 day she eats her lunch and once a week she mentors a 1st grader at that lunch time so she gets to be in cafe 2xs that day. Please help if you can. MANY MANY THANKS
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Thank you so much for answering me. Lulu my daughter is scheduled again to have her next ultrasound in Nov 2009. We have not done an ultrasound in two years so she is now due for ultasound and full blood work up. She has been a terrible eater since birth and have always had to go to doctor when she was very little for weekly weigh ins. We have been to 3 therapists and are scheduled to meet with 2 more. The experts still dont know if it is control issue or she really has belly aches. This is a really tough call. We just finally did food charting and still waiting on results. I know she doesnt get enough calories. I never put pressure on food.
I am sending prayers and loving angels to help heal. She might also benefit from an allergy test to make sure she is not eating something that she cannot. A naturopathic allergy test takes it from the saliva and is not invasive for her.
As for the size, get her to start picturing the perfect size kidney as well as you. She is in great hands.
Roberta
Stop with the coke! ;) lol
Caffeine's not good for PKD and also the carbonation causes extra bloating which can cause more discomfort for us.
It's true....diet does change so many things. Just in general....when you eat better, you FEEL better anyway.
That's what I've noticed anyway. :)
Wishing you all well!
I wanted to comment on the stomach aches you mentioned that your daughter gets. Has anyone considered that they might be due to kidney pain? For myself my left kidney reaches into my abdominal area with the lower lobe aprx an inch away from my belly button. And I do get chronic pain from my kidneys, especially the left. Just something to consider. Pain certainly robs your appetite.
Celexa seems to be a bit of a drastic step to take in trying to increase your daughter's appetite. Here in Canada anti-depressants are not recommended for children under the age of 18 with the exception of Prozac.
I have been on Celexa since last January due to depression and although I have found it to be helpful in mood it hasn't increased my appetite in any way. Which is a good thing in my case.........
I'm sorry for your stress in trying to manage with your daughter's lack of appetite. I like to snack on different trail mixes in the afternoon rather than than bothering with a meal. The nuts and fruits are healthy and low maintenance to eat.