I am the first in my family with APKD and won the jackpot because my liver is enormous as well. Before pregnancy I had a normal figure but after giving birth my liver started to explode. Now it is 6 times as big as it should be and really impares quality of life. My son is eleven years old now and we just found out that he has hypertension :(
I have decided that I will opt for a combined liver and kidney transplant in Belgium (I live in the Netherlands). Is there anyone here who has survived this?
I have PKD but my brother is clear. He has offered me one of his kidneys.What is the procedure to find out if he is a compatible donor? Do we need to be tested at the same time in the same hospital? (As I wrote in this forum about a month ago, Chinese medicine seems to be working for me. I'm hoping that I'll never need a transplant, but it doesn't hurt to get tested, I hope!)
Hi, I am 59 years old and was diagnosed with PKD in 1982. Myself and 3 siblings got PKD from my Dad's side of the family. His mother had kidney disease. It skipped my Dad's generation and 3 other siblings and myself got PKD. I was diagnosed with stage 5 on 12/12/2017 and have been on dialysis since 12/15/2017.I am scheduled to go for a consultation on March 8 for PD dialysis. I am...