I am the first in my family with APKD and won the jackpot because my liver is enormous as well. Before pregnancy I had a normal figure but after giving birth my liver started to explode. Now it is 6 times as big as it should be and really impares quality of life. My son is eleven years old now and we just found out that he has hypertension :(
I have decided that I will opt for a combined liver and kidney transplant in Belgium (I live in the Netherlands). Is there anyone here who has survived this?
Hi everyone, I Am brand new to this. I was diagnosed with PKD in June of 2007, I will make this short the best I can as a lot has happened. I was very lucky to land the best of the best doctors at UCI Medical Center in California. Over the years I had over 400 cystic tumors removed which also had spread to my liver and uterus. After several operations unfortunately I had to have a hysterectomy...
Hi Everyone,I am new to this.....I’m 40 years old and was diagnosed a few years ago with PKD. My kidney function is good, many cysts in kidneys and liver and have high blood pressure.I am wondering about the pain we experience with PKD? I have been have been having abdominal pain for years and recently have been experiencing lower back, hip, flank and groin pain. I was recently in the ER with...