hi everyone, new to the group. I'm 30 years old and have known I had PKD for a long time. In the past five years I've had a kidney infection, multiple UTIs and one cyst infection that required hospitalization.
about 7 days ago I had severe pain in my kidney and stomach regions that went away after two days. Then starting Sunday I noticed that my urine had blood in it. The color is a really light brown. I thought it was a UTI at first so I was prescribed antibiotics but now I think it's actually a cyst rupture. No pain or fever right now but just seeing blood in urine.
how long will this last for? I hate seeing my urine like that and it gives me so much anxiety. Is it normal to see blood in urine for several days straight? I just want it to go away.
Hi everyone. My nephrologist has just prescribed me Tolvaptan. I know there were positive results from the trial but the lifestyle change in terms of drinking more water and going to the toilet scares me. How are you finding it, if you are taking Tolvaptan? Does anyone take it ever have the odd glass of wine or coffee?I would be keen to know and receive your support
Hi Guys - not sure if you have read this before, but have posted about this on this forum earlier.The Artifical Kidney Project is all set to get into clinical in human trials early 2018! if all goes according to plan the device can be launched as early as 2020.I know this information is a big ray of hope for me. Initially, I didn't want to pin my hopes up on this project to be disappointed but...