does anyone who was diagnosed at an early age, how long before you start having major pain and problems? our daughter was diagnosed 6 months ago with innumerable, bilateral cysts. she had a couple of cysts causing severe swelling, blood in urine, which led to the ct scan and the diagnosis. ever since then her pain is minimal and sporatic. she knows what excersises to stay away from to keep that from happening again. but how long is it before she has all of this pain and suffering that you all seem to have? her dr says she was born with it, but she never had any childhood symptoms of any kind until 6 months ago. does that mean that this will progress more rapidly now that shes had her first bout with a couple of cysts?
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