I've just found out I have PKD at age 56.I think I have had it for many years.I have had high BP for 30 years.I've been hospitalized 4 times in the past 5 years for high BP. Iknew I had cysts on my kidneys for about 5 years, but was told not to worry about them. Then I had an CT-scan on my lower back to check my 5-level fusion and they showed up. I saw a neph and he orderded bloodwork,urine and an MRI.It showed numerous cysts, and my GFR was 59.I also have blood in urine. I have terrible back pain but I always thought it was from surgery.I dont know what to expect because my neph seems to downplay. All he told me was my kidney function is ok for now,and there trying to lower my bp still.I was in the hosp. last month and they let me go home when they got my bp. down to 160-107.They added meds but it is still high,142-98.I am taking benicar40,lisinipril20,lasix and coreg. Any info would be appreciated about how fast it progresses or anything. Thanks
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