Hi all, I am new to this support group, in fact it's the first one I've ever joined! I am a 51 year old female, diagnosed w/PKD 20 years ago and the only thing I've had probs with is my BP. Only the last couple of years have I experienced pain, ruptured cysts, etc. My GFR is 50 which apparently is pretty good, considering my age. My dad died of kidney failure at 73, choosing not to go on dialysis. I went to the convention last August in San Diego and learned more than I've learned about PKD than in the last 10 years!!! I'm looking for people who share my disease, as I don't know anyone who is going through this, and wanting to "compare" symptoms.......just don't know if it's coming from the disease or just my age :-0) I'm having ripping, tearing feelings in my belly and back constantly and am figuring that's the cysts....anyone have these pains? Also, when I eat more than just a small meal, I had such a "full" feeling....my neph believes it may be because of the kidneys being so large it's more or less "squishing" my stomach. I also get a very, very nauseated feeling if I eat too much or eat too late in the evening before I go to bed......anyone? Wondering again, is that just age? LOL I would SO like to connect with someone!!! I appreciate any advice!!!
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