Recently I've been trying to find a good support group for pemphigus in my area but since it's so rare it's been hard to find one. So I was really happy to finally locate this forum, it's really weird trying to explain it to other people but I can understand since I never heard of it before now. It's nice to know I'm not alone battling this thing though.
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I had to have a lung biopsy, and I have cancer. A very rare form that doesn't have any standard treatment. There just isn't a lot of case history for this. It is epithelioid hemangio endothelioma. The cancer support group doesn't talk every day. I can understand why. I'm waiting for the oncologist to call back for an appointment, and will hear in the next few days. Who knew. Ha!
It's so hard dealing with pain especially when you don't get any support from the person who your supposed to be closest to. So hard when your trying to deal with pain and that person treats you worse than the pain. Having hard time understanding why. unless you are having a good Day you are treated like crap and they make you feel worthless.