Recently I've been trying to find a good support group for pemphigus in my area but since it's so rare it's been hard to find one. So I was really happy to finally locate this forum, it's really weird trying to explain it to other people but I can understand since I never heard of it before now. It's nice to know I'm not alone battling this thing though.
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I had to have a lung biopsy, and I have cancer. A very rare form that doesn't have any standard treatment. There just isn't a lot of case history for this. It is epithelioid hemangio endothelioma. The cancer support group doesn't talk every day. I can understand why. I'm waiting for the oncologist to call back for an appointment, and will hear in the next few days. Who knew. Ha!
theatre and I are there already. I'm having a very berry tea with crackers, cheese and cherry tomatoes and she's having a joint with some beer and we're both on really comfy recliners on thick pile carpet. we need some help with the decor if anyone is around??