Parkinson's Disease Support Group
Parkinson's disease is a movement disorder often characterized by muscle rigidity, tremor, a slowing of physical movement, and in extreme cases, a loss of physical movement. The primary symptoms of Parkinsons are due to excessive muscle contraction, normally caused by the insufficient formation and action of dopamine, which is produced in the dopaminergic neurons of the...
Hey Everyone. I have started to have a horsey voice. It's been this way for about 4 months now. It doesn't hurt till toward the end of the day. But by then I can't talk at all. I have been on all kinds of antibotics, they haven't helped. Go to doc today and gonna ask about test or going to see and ear, nose, thoart doc. It worries me.
I also go see a movement disorder doc in July. Thought maybe my voice has the tremor. But my doc doesn't think so. Do any of y'all have any help for me??
I also go see a movement disorder doc in July. Thought maybe my voice has the tremor. But my doc doesn't think so. Do any of y'all have any help for me??
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A friend sent this to me..As far as I can see, grief will never truly end.It may become softer overtime, more gentleand some days will feel sharp.But grief will last as long as Love does - ForeverIt's simply the way the absence of your loved onemanifests in your heart. A deep longing accompaniedby the deepest Love some days. The heavy fog mayreturn and the next day, it may recede.Once again, it's...
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Today is my 25th birthday, to my somewhat lack of surprise I can see already no one really seems to care. I've always been the kinda person to make sure that everyone I Care about feels appreciated and knew somebody had their back. I can count 4 times this year when I Went out of my way to make sure a "friend" felt good on their birthday, especially if they got left hanging. Its early in the...
I've seen 2 ENT's; 2 Pulmononologists; 1 Gastronterologist; 1 Cardiologist; 2 MDS; 3 Speech Therapists (ALL trained in Lee Silverman's Voice Therapy)and of course my regular MD...when my hoarseness began and people could barely understand me. GUESS WHAT? I don't know anymore now then I did one year ago when the hoarseness, cough, muscle spasms in my throat, shortness of breath, ETC.,all began. When these vocal cords (which are muscles) and throat muscles go into spasms, nothing works! The hoarseness, etc., can last for a few hours to all day. When the throat muscles spasm and narrows the opening of my throat, I become so short of breath, which leads to anxiety, and it's a never ending cycle. This, almost more than anything is what is the hardest for me to accept. It's hard to struggle for air. It's harder to be referred from one specialist to another and get different opinion from each one. The speech pathologists say that it's NOT my PD because my voice doesn't sound like the normal PD patient's voice (what's normal?). The ENT's both say it's my Parkinsons. The Neuros say its muscle tension dysphonia (no cause for it); Gastro doctor doesn't see any damage to cords/muscles because of my gastro problems....are there any specialists that I missed? One scenario is what was discribed by Bobp, as food may go into the lungs and cause aspiration, leading to pneumonia. Then, we really have problems. So, this hoarseness, throat problems is much more serious than the docs would have us believe. Oh well.....
I have similar problems like the others here. My voice has become very soft and I have to be careful when I eat so I don't choke, but even being careful, it still happens from time to time. Also I have had a cough for about a year now and at times it is quite bad.
In May I found that there was a the Booth Gardener PD Care Center here in western Washington State near Seattle. Even though it meant a 2 hour drive for us, my husband and I decided that it was where we needed to get me so I could get the help that my nuero was not giving me, all he wanted to do was send me to the U of W for brain surgery. Not at the top of my list for treatment!!! Anyway, got an appt. with one of their MDS doctors. What a difference. It was amazing, she actually talked to me and my husband asked us questions and let us ask her questions, and then had me do some different things that tested my motor skills. The appt. was an hour long, again amazing!!! She got started on making some changes in my meds, got me into physical therapy voice therapy. Both have been a huge help. I had started on my own many years ago stretching and walking, so I was a little ahead of the game, but they taught me some new things and also teach you things to do to prevent you from falling, and believe me I needed that help badly. Speech therapy also helped me a lot. My family and friends no longer are telling me to speak up cuz they can't hear me. And that is very nice.
So glad you will be seeing a MDS. Think you will find a real difference in the MDS doc. and a regular nuero.
One other thing I have learned is to make a list of things you want to ask about and things you want to talk about, cuz if you don't, if you're anything like me, you will forget at least one thing.
Hope some of my experiences will help you in some way. Good luck and let us know how you are doing.
Take care.