
Parkinson's Disease Support Group
Parkinson's disease is a movement disorder often characterized by muscle rigidity, tremor, a slowing of physical movement, and in extreme cases, a loss of physical movement. The primary symptoms of Parkinsons are due to excessive muscle contraction, normally caused by the insufficient formation and action of dopamine, which is produced in the dopaminergic neurons of the...
Let me know if you would like more info. I am not selling anything. Advice is free and I only claim that it has worked for me. I hope it can work for you, your father, and anyone else you know that has PD.
Love, Heavy D
His PD Dr. is supposed to be the best one in Iowa. We have only been involved in his PD care since late Winter. We are wondering if there are other medications that could be prescribed or if she is doing the best she can at the stage he is in. He has had Cogentin (sp?)and it was horrible for him. Terrible hallucinations. The only other PD meds I am aware of that he has had are the Carb/Lev and Requip. He has refused DBS because he claims the Dr told him that he would kill him. We think the Dr was telling him the standard explaination that you get for all surgeries that they are risky. He doesn't trust Drs.
Any advice is welcome, but I know he wants nothing to do with spiritual advice and physically, it will also be a challenge.
Hope that information helps!
My MIL's dyskinesias has gotten SO BAD over the past year and her med changes have not helped at all. I don't know what she takes for sure - a lot of stuff. Her body is in constant motion and she burns calories galore. She has lost 40 lbs and I am greatly concerned. Her neuro keeps adjusting the meds (cutting down on mirapex?) to hopefully stop some of the movement, but so far, I haven't seen a change.
I'm a big fan of natural treatments and would love to find out about some options for her.
I was just getting ready to privately message you with this request when I saw jfox108's post. So I'll just ask you publicly instead.
Speaking for myself, the amount of info to glean on the Internet and then try to sort into some kind of workable form is nothing short of overwhelming.
I'm not trying to corner you or put you on the spot. If we could even have a sample regimen of what you did for your sister it would be wonderful.
I realize that it will not necessarily work for all and so I think that caveat should be understood right up front. If you could simply present it as the program that worked for your sister without any type of promise or outcome for anyone else I think it will be understood that it may or may not work for all. If we could actually see something in the form of a very simple overall plan to even get us started, then those who wish to give it a try would have some kind of guidance on where to begin.
Again, this is a sincere request and not an attempt to put you on the spot. Even a small babystep start with visible results will be enough to get us on the bandwagon and make further research easier to understand and the regimen easier to undertake.
he has suffered with stomach problems all of his life and when he turned 80 years old, he had to have an 8 hour operation on his stomach and intestines, i prayed and prayed, he got thru it, yet he was on reglen (sp) at the time, i always wonder if this pushed him into p.d. because there was a civil action lawsuit about reglin causing p.d....then it was dropped.
enough, thanks for listening, i'm hearing all of your pain or hope.