Dyskinesias is an involuntary gross motor movement or spasm that is characteristic of advanced PD. Michael J. Fox is experiencing this now. Tremors, on the other hand, are rhythmic spasms of muscles in the face, neck, hands or the like. So-called "cigar rolling" tremors involve a movment of one or more fingers and thumb. Bradykinesias is slowness of movement that also is one of our symptoms. We may experience all, some, or none of these symptoms. I had tremore in the beginning, but they have stopped since I began my 3-fold treatment program (spiritual, mental, and physical). So far so good.
Let me know if you would like more info. I am not selling anything. Advice is free and I only claim that it has worked for me. I hope it can work for you, your father, and anyone else you know that has PD.

Love, Heavy D

If it were myself, the 3-fold attack would be my program, too. It would be a struggle for my F-I-L. He has never taken care of himself and has always looked for a pill to fix things. We tried to get him to eat healthier because of his bowel issues. If I had that much pain, I would change habits, but he won't. I will give an example of what I am observing with his spasms. When sitting, his whole arm will be shaking. His leg will be going up and down like he is stomping. He told me that normally, while sleeping he will not shake and now, the tremors will wake him up in the middle of the night. Is this dyskinesias? He walks very slowly and stiffly. I never see him make a fast movement. I am going to assume that he does have Bradykinesias. We got him a walker and he started using it day one and uses it all the time now.

His PD Dr. is supposed to be the best one in Iowa. We have only been involved in his PD care since late Winter. We are wondering if there are other medications that could be prescribed or if she is doing the best she can at the stage he is in. He has had Cogentin (sp?)and it was horrible for him. Terrible hallucinations. The only other PD meds I am aware of that he has had are the Carb/Lev and Requip. He has refused DBS because he claims the Dr told him that he would kill him. We think the Dr was telling him the standard explaination that you get for all surgeries that they are risky. He doesn't trust Drs.

Any advice is welcome, but I know he wants nothing to do with spiritual advice and physically, it will also be a challenge.

My husband has had both tremors and dyskinesias; the dyskinesias are bigger movements than the tremors. The tremors are more localized smaller movements but with dyskinsias it's almost like the whole body is moving. If he can reduce the amount of sinemet, it might help. My husband has reduced his sinemet and the dyskinesias are better. Looks like nicotine might help them in reading the latest news.

Hope that information helps!

No surprise about the spiritual advice. We would sometimes rather moulder away in our misery than ask God for help. It is amazing to me how haughty people are down to their last breath. In order to receive something, one has to open his/her clenched fist. Oh well. If he thinks he's going to make it on his own, he will have a rough way to go. I have often heard people who are slipping away say "Don't pray for me." How utterly foolish yet unsurprising. It is the human condition.

My sister experienced Dyskinesias greatly until we used natural products. This helped greatly until it stopped all together. She had many compliants that reacted very well to natural treatments.

Carol, I'm VERY interested to learn about your natural products treatments for dyskinesias.

My MIL's dyskinesias has gotten SO BAD over the past year and her med changes have not helped at all. I don't know what she takes for sure - a lot of stuff. Her body is in constant motion and she burns calories galore. She has lost 40 lbs and I am greatly concerned. Her neuro keeps adjusting the meds (cutting down on mirapex?) to hopefully stop some of the movement, but so far, I haven't seen a change.

I'm a big fan of natural treatments and would love to find out about some options for her.

Carol,

I was just getting ready to privately message you with this request when I saw jfox108's post. So I'll just ask you publicly instead.

Speaking for myself, the amount of info to glean on the Internet and then try to sort into some kind of workable form is nothing short of overwhelming.

I'm not trying to corner you or put you on the spot. If we could even have a sample regimen of what you did for your sister it would be wonderful.

I realize that it will not necessarily work for all and so I think that caveat should be understood right up front. If you could simply present it as the program that worked for your sister without any type of promise or outcome for anyone else I think it will be understood that it may or may not work for all. If we could actually see something in the form of a very simple overall plan to even get us started, then those who wish to give it a try would have some kind of guidance on where to begin.

Again, this is a sincere request and not an attempt to put you on the spot. Even a small babystep start with visible results will be enough to get us on the bandwagon and make further research easier to understand and the regimen easier to undertake.

I would like information on what your are doing. I have the Micheal j fox type movement. slowness and very seldom tremor : only when very tired or stresses. my e-mail is bargincents@hotmail.com

what is the newest news about nicotine? interesting, like to know more. there is one thing that i have and had since 16 years old, nothing like the severe syptoms of what i have read on this post, yet it is called essential tremor. my hands shake and goes from my elbows down to my hands. every once in awhile, my arm or hand will shake uncontrollably..yet it seems like a weakness problem, in both arms, it's harmless. my father also had a few episodes of complete shaking on one side of his body, but only when he is sleeping. he's 82 years old and keeps on going only because my mother "went to bed" and basically stayed there, it's been 23 years now, my dad keeps going with a bad case of p.d. and i'm always there trying to help. very distressing to me, i feel i should be living there and just walk away from my marriage. my thought is always one thing, no nursing home! i'll jump thru hoops of fire for my dad to keep him in his home, also my mum, yet much of my mum's problems are in her head and nothing i can do about it. she resigned to bed because of colitus and then arthritis, she always thinks she is more ill than she actually is. next year, my dad's licence is up, i know they are going to look at him and deny his driving licence. i then know he will lose his will to live. he is the sweetest and most humble man i ever met and i am so proud to be his daughter. i just cannot or did not see this coming on him.
he has suffered with stomach problems all of his life and when he turned 80 years old, he had to have an 8 hour operation on his stomach and intestines, i prayed and prayed, he got thru it, yet he was on reglen (sp) at the time, i always wonder if this pushed him into p.d. because there was a civil action lawsuit about reglin causing p.d....then it was dropped.
enough, thanks for listening, i'm hearing all of your pain or hope.