I had hoped that after my DBS surgery seven months ago that I would no longer suffer from the pain brought on by dystonia in my feet, After changes in programming and/or medication, dystonia will not go away. Botox injections have been suggested by my neurologist and my doctor is waiting for a pre determination on this procedure, and I learned why the other week. Botox would be injected in both of my calves at a cost of $5,000.00!!! Oh...another thing....the injections could wear off in three months. I would like to hear your stories, either positive or negatative, as it relates to treating feet dystonia with Botox injections. Also, it is my understanding that the reason Botox works is because it weakens the afflicted muscles. I would like to know if anyone experienced this muscle weakness and if it is temporary.
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