Pancreatitis Support Group

Chronic pancreatitis can present as episodes of acute inflammation in a previously injured pancreas, or as chronic damage with persistent pain or malabsorption. Patients with chronic pancreatitis can present with persistent abdominal pain or steatorrhea, as well as severe nausea. Some patients with chronic pancreatitis often look very sick, while others don't appear to be unhealthy at all.

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New to this group- Have lots of questions

HI My name is Deneen, I was just released from the hospital yesterday due to what they say is unknown reason -pancreatitis, with severe pain.
My WBC was at 13 and my lipase 78, having gone up since my last visit to the ER 3 weeks ago , for extreme exhaustion, severe pain upper rt side, which that time they found something on my liver, via CT scan. I had a second CT scan done the next day and they said the numbers were within limits?Now I am being diagnosed with stuff with my pancreatic. I am very new to this game, although I have suffered chronic pain and many ailments all my life. They are saying that this can be caused from previous problems with the bile duct, Gallstones, ect . which has been re-occurring since I had my gallbladder removed 3 years ago. I had an EVPR. for the valve of ODDI, three months ago, and all along never have they mentioned anything to do with the pancreatic system. , They said it could be the fiba-myalgia, or problems from IBS, referred me back to my pain specialist after 4 days of hydration, an inconclusive endoscopy, and not a lot of answers. I guess I am just being in a panic. But I do have a couple of questions. Once you have Pancreatitis, does this mean you will always have it? What are high lipase numbers? Sorry I am Rambling.

Replies

deleted_user
deleted_user

First off one episode of pancreatitis does not mean that you will have re-occurant episodes, for the most part. Secondly Lipase numbers range in normality from 0-160, so in another words an out of range would be greater than 160, but normally pancreatitis has a mere result number that of three times the amount of the 160 so for example a pancreatitis attack the patient would have an Amalyse level of 800 to 1000's, and a Lipase structure of at least 500-on up. I have been in attacks where the numbers on both ends were greater than 10,000 u/l. So hope this helps answer your questions.
deleted_user
deleted_user

Thank you so much you answered my questions, Fully. I have been in and out of the hospital 5 times in the last 3 moths and the numbers have been all over the place but never that high. It just gets so crazy when they keep handing me new dx for everything without any answers.
Staceu1209
Staceu1209

Hang in there!! Just because you have had an acute attack of pancreatitis doesn't mean you will have reoccurances or be afflicted with cp. Sometimes people only get pancreatitis once and it never darkens your door again. I'll pray that for you. I have both acute and cp all my life,and I wouldn't wish that on my worst enemy. Anytime you have any questions about anything at all, feel free to contact me. It's a lot easier if you have someone to lean on who is in the same boat. Take good care of yourself and get well!!!