Pancreatitis Support Group

Chronic pancreatitis can present as episodes of acute inflammation in a previously injured pancreas, or as chronic damage with persistent pain or malabsorption. Patients with chronic pancreatitis can present with persistent abdominal pain or steatorrhea, as well as severe nausea. Some patients with chronic pancreatitis often look very sick, while others don't appear to be unhealthy at all.

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Lipase levels

My lipase levels weren't that high so my Doctor said this would go away soon but I've been in pain since July 4th and the pain is not getting any better at all...I've been to the doctor over 3 times concerning this. What should I do any advice? The pain is terrible.

Replies

deleted_user
deleted_user

You really haven't given anything to go on except your lipase levels aren't that high and you're in pain. Have you been diagnosed? Do you have a GI doc? More info would be helpful.
dcockfield59
dcockfield59

with cronic pan your lipease levels don't have to high mine never r any more find a doc that will take u serious my hosp just admits me on sight
Sesser
Sesser

Are you new to CP? As the other poster stated, with CP its often mild or not elevated at all. The highest mine has been is double, but since its just slightly elevated. Also, depends on how long you wait to test your labs. Panc pain can last a very long time.
deleted_user
deleted_user

Oh ok ...well I went to E.R and everything was normal but it still hurts to eat and drink water...
I've had it since July 4th and was given fluids and pain meds.
Yeah, the doctors don't think I should be in this much pain if my lipase is normal which is really annoying because I am in pain. My Doctor said I had acute pan and that it would go away in a few days..yeah right! I've had blood drawn 5 times since the 9th...
deleted_user
deleted_user

Hi Marwen. My Lipase level was only 499. My Doctor didn't think I should be having as much pain as I was having. I couldn't keep anything down, including Gatorade. I was extremely dehydrated when I was hospitalized last month. I was so dehydrated that they had to call a nurse from the ICU to get an IV in me. Lipase levels should not be the final word the decision to hospitalize you and your Doctor should realize that. If you cannot hold down fluids and the pain is unbearable, it's time to go. Lucky for me, I have a team of good Doctors and nurses that actually listen to me. This has not always been the case. Perhaps it may be time to look for a new Gastroenterologist? God Bless you and I hope you feel better.
deleted_user
deleted_user

Lipase levels might not be elevated if you have most of your pancreas not functioning anymore.....otherwise if you have an acute attack of pancreatitis then your lipase would be elevated at least 3x of normal results......I use to have them in the 1000's even with only being born with the head of my pancreas...but my ast er visit my lipase isn't elevated so now my pancreas has stopped producing enzymes they said only a small portion of my head is healthy (oh goody) (sarcasm) anyways if you have a gallbladder it could be that or it could be irritable bowel or it could be gluten problem developing ...there are so many more disease of the gastro system that can cause excruciating pain....make sure you get tested and then diagnosed instead of thinking right away it may be CP....Before you can get a diagnosis of cp you need to have been diagnosed with acute pancreatitis somewhere down the road and it has to show it is being necrotized or calcified as well....MRCP would show that. Hope you feel better soon and lay off drinking alcohol, smoking and eat a low fat diet.....that is the basic 101 of taking care of a cranky panky!
Sesser
Sesser

My dr said one can have CP without ever having an acute attack-usually people like this go yrs with minimal change pancreatitis and have more mild attacks.
kelsmom51
kelsmom51

If you have a GI tell him what is going on. They let mine go until the pancreas starting destroying its self. I had to have it removed and the speen too. Go to a pancreas specialist if there is one in your area. There is a list somewhere on here where the good ones are located. Do you still have your gallbladder? Sometimes it can be gall stones. Hope is helps. Just don't give up make them find out what is wrong.
deleted_user
deleted_user

mine were over the top high. but the initial pain subsided fast. but I was left with pain for well over 6 weeks.. which was the time they gave me initially.. have a look at gastroparesis .. google.
I on on my 3rd GI surgeon. this is my 3rd attack
but they think it is gall stones. that have passed.

what tests have you had done. depends on where your pain is ?
deleted_user
deleted_user

you will have an acute attack an not know I Sesser....when I was a kid I didn't know why I had severe stomach aches and my parents weren't aware to take me to the dr for it...so I def know you had to have acute flare ups which cause s the pancreas to calcify or necrotize itself.
deleted_user
deleted_user

I most often have acute attacks without my levels going up. I have a great PCP at Beth Israel in Boston, but have spent the summer in Kittery, ME. The closest hospital to me is in Portsmouth, NH and I have been there probably 6 times in 3 months. Now, even though I can't keep anything down and am in excruciating pain, they won't admit me. Am I the only one whose enzyme levels don't go up during an attack? Also i am dealing with a boyfriend and his family who have absolutely no idea just how much pain I am in daily. My boyfriend gives me a hard time every single time I take a pill.
deleted_user
deleted_user

Oh, and by the way, I am moving to Dayton, OH in a couple of weeks so I'm going to loose my great PCP and don't have a sure way of getting my pain meds once I get down there. I'm pretty worried.
deleted_user
deleted_user

Hello again Jen. The pain meds are a must with this disease. I would start looking for a doc now! Search out a nearby hospital near where you are moving via Google. Use their Physician referral service to find a PCP and Gastro and contact them right away with your concerns. Get all of your records in hand before you move and take them with you. All tests, procedures, blood work, labs, ER and physician notes and nursing notes. Many doctors are afraid to prescribe narcotics to patients they do not know. Have your gastro and PCP write letters about your condition and what they have been prescribing for pain and take them with you. It would probably be better to have all of this taken care of before you move. I would be worried too if I had a chance that I would lose my pain meds. Good luck! Chris... (The Largefrog)
deleted_user
deleted_user

Thanks Chris, sounds like great advice. I have an appointment to see a new specialist and will get on it right away.
Sesser
Sesser

Diane, thats what my dr said too-that it can be mildly acute and I may not have even known it. Ive read online people can have acute attacks and not know too-not having the "classic" acute.

Its all mind boggling to me. I keep trying to find other things that could be causing my slight elevations and issues-but I know its me just not wanting to come to terms with it