Has anyone else been told after a fine needle biopsy that they had adencarcinoma pancreatic cancer and then after having the whipple procedure was told that they have Autoimmune Chronic Pancreatitis(AIP), I am having so much pain lately that it worries me more, because I feel so unsure of what I have. The pain I get is like a pipe going through me just at the top of my rib cage, and then I have pain that is on my left side. I don't understand why I have the pain on my left side because there is nothing there to have pain with. I had six years ago colon cancer, and then they did a complete hysterectomy on me because I had a lot of cyst, none was cancerous. Then that year they also diagnosed me with CLL, Chronic, Lymphocytic Leukemia. Then last year I was having alot of pain and was told that I had an infection in my pancreas, I couldn't eat anything and that went on for about 3 months, they but a stent in me because they said I had a blockage. Then they did the fine needle biopsy , so they did the whipple procedure. Now they are saying I need to go on predisone which I don't want to take, so now they are saying that I need to have my pancreas taken out. I am so confused and so hurting I just don't know what to do anymore. I wanted to go to Mayo Clinic but my insurance company will not allow it. I was reading about that new medicine that William is taking, that seems promising. Anyway, has anyone else been through this with being told they had the cancer and then told it was the AIP? I would really like to here from anyone that has been through the same.
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