I had a heart transplant when I was 12 and a half years old. I was born 2 months pre mature which created a birth defect to my heart called Restrictive cardiomyopathy. RC is pretty rare, especially for my age but my heart failure was congenital. RC is a condition that makes the walls of the lower chambers of the heart abnormal and lack the flexibility to expand as the ventricles fill with blood. I have been to so many dr's over the years for my heart issues. I survived the transplant with some low blood pressure issues during the operation with a good outcome. The healing process took a very long time and I would have to say that I will never fully heal. My new heart feels so weird, just different. I was fine after surgery, but I have recently been getting horrible aching pains that come out of nowhere. Its a sharp stabbing pain that goes up my back and shoulders then through out my chest. I've mentioned this to my dad, that my heart feels weird and he said it's normal. I know its normal because having a change like this will always make the body feel a little different but the pain attacks are unbearable. Has anyone else who has had a heart transplant had these pains? Its so frustrating. I'm scared to get back into sports because of getting one of these pain attacks, that would be so humiliating. I have a horrible medical fear so I really want to try to get over this without consenting a doctor. Which I know is stupid but it would stress me out. If anyone can give any advice I would appreciate it so much.
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