Optic Atrophy Support Group

Optic atrophy is the loss of some or most of the fibers of the optic nerve. The optic nerve is part of the brain and has no capability for regeneration. Hence, there can be no recovery from optic atrophy and the term may refer to serious or mild, but always irreversible visual loss due to damage to the optic nerve. There may be symptoms associated with loss of vision.

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  • https://runyourdaytips.wordpress.com/2016/09/20/the-optic-nerve-that-couldnt/ This is my experience with OA. I was diagnosed at the age of 9 with hypolasia of the optic nerve, that later turned into atrophy after maturation. I'm 31 and have been legally blind for 8 years. I've never driven and transportation is tough on family members.
  • chrisx316

    Newbie here

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    Well, I'm hoping that this is still an active group, and that people still post on here. (From the looks of it, I'd have to say, no.) Anyways, here's a little bit about me. I'm 33. At birth, I was diagnosed with hydrocephalus, congenital nystagmus and optic atrophy. I have a shunt in, which had to be revised twice in my lifetime. As far as my vision goes, it's hard to read at a distance (I have...
  • iv had ona my entire life and have never had any support or help in the matter and would love some feedback
  • Krek

    Is this group still active?

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    Hi! my name is Richard, I was born with OA, supposedly caused by my father being exposed to Agent Orange in Vietnam.I have doubts about that, anyone know anything about this?
  • Hi i am taking Medrol ( prednison) 64 mg a day.. for two weeks.. i know its not allowed to consume sault, still i do this because i wanna gain some fat on my cheek bones.. now my question is: will just my face get fat or the entire body? just to know if i drop sault or not...thanks
  • deleted_user

    Optic Atrophy

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    I am 45 years old now. I was diagnosed with OA in my late 20's. After seeing many top specialists the reasons for my case of OA seem to be a combination of malnutrition and cigarette smoking. I have stopped smoking and no longer starve myself; my condition has stabilized. I am wondering if others in my age group are suffering w/ OA possibly due to...
  • deleted_user

    newly diagnosed-very scared

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    Hello,I am 42 and have been diagnosed with bilateral opitc atrophy. My right is in the 400 range and my left is barely 20/20. I have had several tests, scans, punctures, blood test but all are coming back negative. I am going for a second opinion in the next two weeks. All this has taken place in the last 3 months. My visual acuity is poor now and I am facing the possibliity of not driving...
  • Have you tried any treatment for optic nerve atrophy ? If so, plz post here !
  • deleted_user

    anyone else

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    when i get frustrated because of my blindness I cuss blindgirl or I hate being blind or it sucks being blind.When I say these things to myself the frustation gose away.have anyone else done this
  • deleted_user

    Nerves

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    Optic Atrophy is a nerve disorder I think that this site will help you with resources and links and how others have dealt with similar issues . There are new topics everyday - a lot of research goes into the Neuropathyteam posts which provides many resources and links. Thought we could help.. http://dailystrength.org/groups/neuropathy
  • deleted_user

    Homeopathy.....

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    In allopathy, there is no treatement to recover from this deadly dease named "Optic Atrophy" but have any body tried homeopathic treatment for it.
  • deleted_user

    Scared to go blind

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    I'm 27 weeks pregnant and I'm slowly losing my sight. I have noticed a drastic difference in the last year. My eyes feel droopy but don't look it and they feel weak. My vision is blurred more than usual and everything feels like it's worsening. I'm scared that when I have my baby, I won't be able to really see him, or see him grow up.
  • I am a Chinese youngman. The doctors in China told me there is no treatment to optic nerve atrophy in medical science. I hope all of my friends in this community can give me some new iinformation about the progress in the research of this disease at any time. Thank you very much!
  • deleted_user

    Hello to Everyone

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    Hi Everyone. I am new to this site, n just thought of dropping in to say Hello to all members.