Non-hodgkin's Lymphoma Support Group

Non-Hodgkin lymphoma is a type of cancer arising from lymphocytes, a type of white blood cells. It is so called because of its distinction from Hodgkin's disease, a particular subtype of lymphoma. It is in fact an overarching term of many different forms of lymphoma, each with individual characteristics. Most cases start with infiltration of lymph nodes, but specific...

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Lymphomas
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symptoms

deleted_user
deleted_user
Hi all,

I have been unwell for 4 months now.. started with a virus and i havent been able to shake it. I have enlarged lymph nodes that have never been painful or gone down. I have had a rash and itchiness, hot and cold all the time etc. Initial bloods ok, i am wondering what your symptoms were. They are talking about doing a biopsy which i am unsure about? did anyone have normal bloods and then diagnosed with NHL??

dante
deleted_user
deleted_user
Well Iwrote and I dont know what happened to my message. So hope you dont get this twice. I have been diagnosed with nhl in 04. My bloods were normal. Also the needle biobsy was normal then I had the surgery to remove it and that is when they tested it and I found out .
Well hope you take care of this.
Dont wait too long.
Hilde
deleted_user
deleted_user
Three years ago I felt like a had a virus, had terrible sweats and itching. I got weak and passed out. Finally a blood test showed a low blood count. A couple of days later I got so weak that my doctor referred me to an oncologist. They took Cat Scans and a bone marrow test and bingo I had Indolent Marginal Splenic NHL. I had very little blood left. My blood was so messed up with anti-bodies that it took them 3 days to find a match. My blood count was 5. They transfused me with four pints and began Rituxan treatment. It killed the cancer cells in my bone marrow and spleen. Then
last October I began getting bad indigesting, the sweats and itching and weak again. The bone marrow test showed no cancer, but the CAT scan showed a huge spleen. I had surgery to remove the five pound spleen. Since then I have been fine. A bone marrow test and CAT scan will find NHL. You should be referred to an Oncologist.
deleted_user
deleted_user
Hello Dante,
I would strongly recommend having a lymph node removed. My ear, nose and throat doctor that did the surgery said that the pathologist typically needs more than a needle aspirate to really do a thorough job. My surgery was no big deal and I am glad to know excatly what I have and will soon know what can be done. I had absolutely no symptoms except the nonpainful lump next to my jaw bone. I agree with Hilde - do not wait too long. Dave
deleted_user
deleted_user
Hi My blood tests were always normal.. After a year of being so sick they finally diagnosed me with NHL.. By that time I had so many lymphomas, the worst being in my femur bone and as a result the bone fractured... terrible experience... See your oncologist immediately.. I am doing well today, 8 years later, but I did go thru 4 to 5 years of absolute hell......
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