Hello, I'm JoanneK - I just became a member of this group and I hope it can be the source of information I have been searching for. I was diagnosed with dysautonomia in 2006 but it answered alot of health related questions that have baffled family, doctors and me since childhood. I was the only child in kindergarten who could raise their hand and predict throwing up! I have always suffered from gastric problems and was finally labeled as having gastric dysmotility in 2005 after a new GI doc ran 2 years of re-testing with no logical results for the dysfunction. In 2005 I became hoarse and tests showed a loss of the right vocal cord movement. That led to Neurology which led to the diagnosis. I remember leaving the hospital after the throat nerve testings and looking at my sister and saying something like -- I think they finally figured out what's wrong with me. Since the diagnosis, things have progressed more quickly than I anticipated. My web research and the information out there is very limited and speaks mostly of the heart related symptoms and the complications of Diabetic Neuropathy. All well and good but I want to know if other people are having some of the more odd symptoms and if there is anything they have found to work. Here goes! Ear pain being caused by jaw clenching due to chronic nausea - has anyone found anything to help with either of those? How about just the chronic nausea? Nothing tried has worked so far except Anzement but the insurance won't pay for enough of it to make it worth my while. I have three parts genetic and 2 parts acquired - does anyone else have this as well? Is anyone else have blurred vision in one particular eye on and off? Does anyone suffer from allergies which sets off all of the typical reactions - but I have severe mouth itching which is NOT food related. Does anyone have any suggestions? Seasonal changes play havoc with both my gastric system and the neuropathy. Has anyone found anything that helps with the seasonal transitions? Has anyone noticed cognitive changes with this? Not being able to think as fast, react as fast, confusing the Drive and Reverse on the car, etc.? Has anyone noticed an affect on the disorder in large noisy crowds -- like restaurants? Fatigue? Has anyone found a solution to driving at night or even during the day between light and shadow - like driving in and out of tree shadows? Well, I could go on and on but I'll start there. What they say is true - the only predictable thing about this is that it is unpredictable. Each day brings new symptoms and I'm just trying to keep up. Thanks. Joanne
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