Hello there KristiL. I know it helps me to write down what issues I want to talk to my doc about before the appt. Helps me not forget. I seem to regularly find myself in one of those days where I would better off staying in bed all day when my appt. times show up. This makes that list... written well before the day of my appt. an even more important tool. I find that it also helps to have one list for me and one for the doc. this allows the doc to address the issues in any way he wants too... and I can also make one of the lists part of my actual physical records which helps document what I have brought to the table to be addressed and no one can say... oh no u didn't tell me that down the road.
I know for me right now I need to write my list for friday and take good notes of what he says to me and what he wants me to do. I have waited to see a new pain mngmnt doc now for over a year and my pain meds have not had my pain underany good control for over ayear and I am sooo desperate to see him its insanity. My quality of living have dropped down so far again it's mostly in bed and cannot keep up with my household of limited chores... I had to see this one doc before seeing the pm doc and this will be my 3rd appt with the before guy. My 1st appt went really well but the second appt. seemed as if it was a different doc in personality and bedside manner and his ability to listen to me so I am warry of this nxt appt.
We struggle so much and we do get abused often by those who never do such things... yet it is our reality at this time. Please try to keep ur head up and we do have another group called advocting for ourselves umm .... be your own best advocate is what I think it's called... come and join us there too we are trying to be there for self and others...take care my friend
in Light, Love, truth, & Service,
TerrieAnn
'ralop'

KristiL, I know how awful it is to get to the dr. and then be so sick, or in such pain you can't remember what you wanted to say. I usually make a list also, like Terri Ann mentioned. Sometimes I make it days in advance, because invariably the day I see my doctor is not one of my "good days" I think it's Murphy's Law or something. My PCP is a very compassionate lady who takes all the time she needs with all of her patients, but my neurologist is an in and out, "you're doing fine" kinda guy! All the other docs are somewhere in between. Take care ~Lois Lynn~

Oh..now I remember what I REALLY wanted to say. About you walking funny. I have what is called "Motor Neuropathy" in my right leg. It is the perneal nerve that is effected, which causes "drop foot". For years I knew something wasn't right with that leg/foot, and the physical therapist's did too. The more tired I got, the more my foot would drag. Well the EMG showed the perneal nerve damage. Now I wear an AFO brace, have for about 5 yrs now, and it works fine.