I am new hear so please forgive me if I go straight into self pity mode. Both my sons (ages 7 years and 2 years) suffer from NF, my youngest with pseudarthrosis of his right tibia. He has already undergone one operation to have a metal rod in his leg. Maybe I am having a bad week or so but looking at my little boy recently and watching him etc etc and I could not help but think that all the problems he is going to face are my fault. Yes I know deep down that is the wrong way to feel but I am his mother and I am responsible for him, I need to protect him and because of his condition I cannot protect him, yes I can help him but how far do you go in helping and that decision of being kind and doing what is best in the long run. I have certain feelings about certain issues so why are those words, why, when and if keep constantly spinning around in my mind. Does that make sense? My little boy is so happy all the time and does not realise (probably a good thing) what the future may or may not hold for him. When do I jump in to protect him and more so what do I do and how do I do it??
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