
Neurofibromatosis Support Group
Neurofibromatosis is usually noncancerous. There are three types of this condition. Type 1 usually appears in childhood, while Types 2 and 3 appear in early adulthood. Type 1 can cause bone deformities, learning disabilities, and high blood pressure. Type 2 can cause hearing loss, vision loss, and difficulty with balance. Type 3 can cause chronic pain throughout the body....

deleted_user
I have a problem telling others about my NF. Looking at me you would notice the NF. I have the caf au lait spots, but they are on my chest, back, and upper arms. Clothes cover them. I don't have a problem getting a date, I am a decent looking guy, but I don't let the relationship ever get serious. I don't know how to tell the girl about the NF. I guess if I can't really accept the way I am, how can I expect someone else to. This really sucks. I would like to get married one day, but I always break off my relationships before they get too serious so I don't have to tell anyone about the NF. How and when do I tell someone I am dating about this?
Posts You May Be Interested In
-
theatre and I are there already. I'm having a very berry tea with crackers, cheese and cherry tomatoes and she's having a joint with some beer and we're both on really comfy recliners on thick pile carpet. we need some help with the decor if anyone is around??
-
I'm trying to exercise daily. I was doing fairly well until I sprained my ankle 2 weeks ago but now I'm getting back on the horse. Today I walked over a mile with my arm weights that are about 22lbs total. I was out of shape and it was hard on my arms. I also did my 30 situps. I'm also going to drink a lot of water and try to eat healthy. I do tend to have a sweet tooth but I'm cutting...
I have a lot of itty bitty tumors, but nothing that really stands out.
I have a lot of spots too.
I don't really let anyone close these days but for other reasons other than NF.
I tell people though that I can't have any more kids....
I do want to remarry though.
Take it this way, if they judge you for it its their loss anyways.
I have lost people cause they don't want to deal with it.Those I am better off without.Give someone a chance and tell em if you really click with them.If they don't want to deal, they weren't worth it in the first place.
Hang in there, we all go though this to some degree, as you get more bumps as you age.Message me if you need me.
Hugs and prayers.