I was just wondering if any of you have heard of a person just carrying the gene, or is it possible to go through life with out the lumps and bumps. I was diagnosed with NF1 when I was two based on the number of cafe ole spots, and my slightly larger head. However through the years of waiting for a can of worms to open I have had no other symptom. I am 21 now and have not had a single lump and although I am extremly grateful part of me is still worried about them randomly showing up later in life. I recently went to the docotr and had my eyes checked for the second time, no nodules. I am pretty sue my father has NF1 as he had cafe ole spots but just like me he does not have the lumps or bumps (that I know of). Because I havent met anyone else with NF1 and have utterly freaked myself out with the research I have done, I was wondering if anyone more familiar with the disease could give me their opinion.
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