Hi ppl.. I'm a 24yr old girl who has nf1. Ever since I turned 21 I've been noticed the growth of neurofibromas all over my back and chest. It's not so bad right now though I'm scared it's going to get so much worse. I think about it all the time and get sleepless nights thinking about what could happen to me. How old was everyone when they noticed rapid growth of their neurofibromas? i know it varies from person to person. Does anyone know if there anything that can slow down the growth?
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