He my name is jenni I'm 26 and I have a 2 yr old daughter with NF. She was diagnosed at 4 months.I joined this site to learn more about NF since I have been pretty much in denial sinse they diagnosed her. The more I read the more scared I get. I don't know if I should contact a specialist. or stay with her doctor who blows this off like no biggy. She has quite a few spot. but no freckling, her head is normal in size, but she is slightly shorter than most her age.she has had to blood work for NF nor any MRI's. I just really want to know where I go from here. I want to be as educated as I can about this but also do NOT want her to grow up with the "label" either. if anyone could shed some light it would be Great. Thank you so much
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