Hi, My daughter has Cafe au' lait spots, freckiling,slightly larger forehead, and has gone for an MRI because of some nausea and vomiting. The MRI showed a bright spot that has to be watched. We are going to a genetics counsler on may 5th. This is brand new to me I have never heard of NF before my daughters cafe au' lait spots. I am scared and preoccupied with everything about NF and want to talk to other people so I can learn more and hopefully make myself feel better. The not knowing what the next day will bring is kind of consuming me and I need to find a healthy way to handle this. I know God only gives us what he knows what we can handle, but I don't know how to handle this. My daughter is 4 years old and is my sunshine. Any advise or support is greatly appreciated and needed thank you in advance and God Bless.
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