Hello all, I am very new here. I have a 15 month old son that has NF1 and he CRIES ALLLLL the time. I have tried everything and am in need of advice from some NF1 savvy folks. Could he be in pain, does it hurt? Do any of you remember being young or do you have young children and can you please tell me what it feels like! I don't know anyone that has NF1. So far little Cody has about 30 cafe au'lait spots as his only sign. He has had an MRI a CAT scan and three eye doc visits. We have met with genetic counselors and have run out of answers and feel very isolated.I would appreciate any feed back. Thanks
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