So my little girl is almost 16 months now and its time to visit the genetic dr again! I think that she has a few more cafe au lait spots and maybe a couple of tiny spots that are slightly raised since last year. I cry almost every night when I think of what she may have to deal with. I had never heard of this condition until they told us she could possibly have it. I have tried to educate myself but every time I start to read something I get so upset and angry that maybe I did something to cause it.. She is such a gift so happy and loving. I just try to soak up every second with her
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