I have the same worry. My children with NF are 14 and 18 and so far no major complications, but I do worry if they do, will they blame me.

I'm sure you domt have to worry about it. We all get ******** off about it but we dont blame our parents do we. It might be nice to point the finger at something or someone, but it is just one of those things. But I do blame my dad for not having the DNA to make me a great sportsman or have an IQ of 180 :-)

I am 43, and I am not angry with my mother, My daughter will be 21, and she is not angry with me, I don't like having NF, and I am more angry cause there is so little known about NF by the medical field and also jusst the general public, I am angry that is liked a "hidden disease" espeically since more people are affected by nf, than a few other dieseas combined, MS has a telethon, and nf has nothing, and other diseases that affect fewer people have more attention then nf, no it is not a weird question, I have thought the same thing I have even talked to my daughter about nf, ans she knows that is not something I could contrl, she thanked me for giving her life as parents, we would take every pain, every ache and every bad thing if we could take it in place of them, and she knows that, as I know if my mother would do the same for me.

I'm ticked off that I do have it & constantly ask,"why me?". No one in my family has it. I never looked into learning more about NF until recently, & its part anger, sadness, and vanity that is driving me to find alternatives (plastic surgeons/dermatologists) or specialists who can help us.

Since I am still learning about NF. Will some of you please tell me the sypmtoms or complications u have? I am wondering what if any my son may have now or will have that I am unaware of.

First and foremost, nf affects everyone differntly, even in the same family, so please don't let our stories scare you, I will pray that your son will have nf very mildly. I have the cal spots all over have had them all my life, I have few of the bumps, in certain light they are more noticiable the other times, i have seizures, I am loosing my hearing, I have had learning problems, I have chronic constipation, last month i had to get a tumor removed, at first they thought that it could be cancer, sometimes I loose my balance, but there are many people that have a mild case, and compare to others mine is also mild, I am so very sorry that you son has nf I wish I could tell you more this is just my story, my mother only had the bumps, with no other problems unitl she got in her 60s but those are things that could of happen to her without nf, my daughter is 21 and so far, she just has the cal spots, I hope I answered your question and I hope I did not scare, you, my prayes are with you

My dad had nf. I'm not mad at all that I got it from him. I am mad that it is not out in the public eye at all. It feels like we have to hide because we hae this.

I know what you mean Gleason. I don't think people understand how devistating it can be. That is why I am running the NF marathon in May. And I tell anyone who will listen exactly why.

I just don't have the energy to do the marathon, I have been having troubles with my thyroid, and blood sugar both on the low side, wonder if that has anything to do with nf

My other weird thoughts were that he would be embarassed by me if there are a lot of bumps...
but I know kids often love their parents no matter what they look like.
I just have a little too much mental time on my hands sometimes.
I just wish people knew more about it as you all have mentioned.
What are a few bumps anyway, or a lot of bumps for that matter. we are all still human just wanting to enjoy life the best we can.\

I know what you mean, I was never embarresed by my mother, she had the bumps all of my life, me and my sister would have probally beat anybody up if they had said anything, but it turned out our house were the neighbor hood hang out, when we lived in calf. all of the kids hung out at our house, then when we moved to texas, she taught the youth sunday school, and once again we had all of the kids at our house again, I don't near the bumps my mother does, but my mother never let them slow her down she is truly amazing, to me my mother is just so beautiful.

oops, spl, grammer again. I don't have as many bumps as my mother

I am the only one in my family that has NF as well...so no one to get angry with. I have chosen for myself not to have kids so I dont pass it along.

I am 47 now & most days I do regret not having kids. I certainly would not want to pass Nf on to my child we live in a beauty obsessed world as it is and it will almost certainly get worse. But if I had a young partner & the money for screening I am sure I would make a wonderful dad.

I am sure you would Dave.