15yo daughter with neurocardiogenic vasovagal sync
I would like to find someone with a teen that has been diagnosed with neurcardiogenic vasovagal syncope. My daughter was diagnosed 3 yrs ago which took a year to find a doctor that figured out what was going on. Her syncope is different from anyone else that I could find. She does not have fainting spells. She gets dizzy the ENTIRE TIME she is standing up. If an episode lasts longer than 1 day it will last 7 days up to 14 days. The doctor stated that she would starting fainting so we keep her in a wheelchair in public or at school or she crawls everywhere at home. The doctor stated that she would "outgrow" this. Well, its been almost 4 yrs since the first symptoms and frankly I'm tired of it. I can't imagine how she feels when she can't do what her friends are doing because she can't walk. I was just hoping someone else's teen has this but been treated with some kind of treatment. Thanks.
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