Hi all Im new to these boards. I have Narcolepsy and take Concerta 18mg 1 tab per day. It works but I dont sleep well. Also I use a CPAP for sleep apnea which helps alot. I have heard alot off people talking about Xyrem helping them with narcolepsy. The first neurologist I went to to try it shut me down. She said she didnt like the sleep cycle it induced or something. Im like have you seen my sleep cycle or lack there of?? She wanted me to try a bunch of other medicines. So I did and didnt like any of them. The first drug was nortriptyline and the 2nd was lunesta. I get impacient with doctors easily and am about to give up with her. Anyone else had any trouble getting Xyrem prescribed for Narcolepsy? Or any success/failure using the drug?
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