I feel so out of control I just want to scream. i was so excited to go to my sleep doc. this morning to discuss tratment options, but I left there in tears. In case you haven't read my profile I will breifly fill itin. I was just dx in Nov. with N,C, and EDS, although I had been suffering with these for many years. Mostly the EDS affected me along with long time insommina. My GP has had me on 20mg daily of Adderall XR and lunesta, as I reported to her things were getting worse she send me to the sleep doc. did the overnight sleep test and the daytime nap test, hence the dx. provigil was submitted for approval to insurance, and while waiting I was given 2 weeks of 100 mg samples to take 1x day. i guess i am one of the small percent of people who just can not tolerate provigil, which turned out good since ins. denied it. Any way over the last month I have been doing alot of reading about N and treatment options. I also suffer from SP about 1x a week. Well went in to doc this AM with high hopes of new meds. being prescribed, with the hopes that they would help, when doc says he is not sure how to treat me and is going to consult by phone with a doc in Detroit ( I am in Louisiana) who has been researching N for 30 years, and it could be at least a week before he will be able to get a phone consult with him, so I should contuine as I am, even though I am not getting any better. my doc. is concerned because I am also a diabetic and my husband travels out of town quite often so he doesn't think Xyrem is right for me, and he's not sure what stimulant would work best, as i do not do well with time released meds, hence the Adderall not working. Any way I am sorry I have rambled on so long, I guess I just needed to get it off my chest. If any one has any suggestions on how to take control of my own life again, I am open to just about anything!
Thanks for being there
Thanks for being there
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