I just got off the phone with my husband who is in N.C. at a conference speaking on health care. In his presentation he included an antidote about my last experience in the hospital that included mentioning I had narcolepsy. He was approached by a women after the speech who asked him how his wife felt about him telling people she has narcolepsy. He assured her I was fine about it and then she shared she had narcolepsy and they had an animated discussion about the topic She is going to the NNetwork conference in Oct. I thought I would post this antidote and see how you all feel about being public about your narcolepsy and how it feels when you find out someone else narcolepsy. I know that I know 4 people with MS, thus I have always been concerned about MS and know some about it and support walk-athon folks and all. I care about MS because I know people with MS and always have. Narcolepsy is as common as MS. I could know 4 people (not including you guys of course) with Narcolepsy and I wouldn't know it. Before I was diagnosed I wasn't particularly interested in narcolepsy-it wasn't on my radar...it was "so rare" after all and I didn't effect anyone I knew...anyway yes, he could reassure that women that I don't mind if he tells people I have narcolepsy. Comments?
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