Narcolepsy Support Group
A sleep disorder (somnipathy) is a disorder in the sleep patterns of a person or animal. Some sleep disorders can interfere with mental and emotional function. If you are having trouble falling asleep or having some other kind of sleep disturbance, this group is for you.
My son has had a really hard time over the past several years. I thought it was normal because he was acting like my brother did. Well, my brother is now 23 and acts almost like a vegetable. The police have drug tested him several times and he comes out clean. He is being mistaken for being on drugs. My brother has not had treatment nor has he received much help for anything (my mom is in denial)
My son is headed the same path. His symptoms at first seemed like hypothyroid, and it runs in the family. After the last dr appt, the doctor was suggesting a sleep study after reading the list of symptoms. He also asked several random questions. I thought it was because of his weird sleep apnea, but now I realize it was because he points to Narcolepsy.
My father and brother and grandmother and myself all have really strong symptoms (me not as much).
Can someone tell me what happens at a sleep study? What should my son do to make sure his problem is found, and he isn't on a "good day" that day? I can't imagine it being anything else! The weird sleep patterns, falling asleep at dinner in his plate, while he is talking, exhausted all the time, falling asleep in the shower, sleep apnea, adhd symptoms, bad memory, muscle weakness... the list is almost text book.
Thanks
My son is headed the same path. His symptoms at first seemed like hypothyroid, and it runs in the family. After the last dr appt, the doctor was suggesting a sleep study after reading the list of symptoms. He also asked several random questions. I thought it was because of his weird sleep apnea, but now I realize it was because he points to Narcolepsy.
My father and brother and grandmother and myself all have really strong symptoms (me not as much).
Can someone tell me what happens at a sleep study? What should my son do to make sure his problem is found, and he isn't on a "good day" that day? I can't imagine it being anything else! The weird sleep patterns, falling asleep at dinner in his plate, while he is talking, exhausted all the time, falling asleep in the shower, sleep apnea, adhd symptoms, bad memory, muscle weakness... the list is almost text book.
Thanks
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theatre and I are there already. I'm having a very berry tea with crackers, cheese and cherry tomatoes and she's having a joint with some beer and we're both on really comfy recliners on thick pile carpet. we need some help with the decor if anyone is around??
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I'm trying to exercise daily. I was doing fairly well until I sprained my ankle 2 weeks ago but now I'm getting back on the horse. Today I walked over a mile with my arm weights that are about 22lbs total. I was out of shape and it was hard on my arms. I also did my 30 situps. I'm also going to drink a lot of water and try to eat healthy. I do tend to have a sweet tooth but I'm cutting...
I cant imagine what it must feel like as a parent, watching their son suffer.
I have been recently diagnoised with narcalespy and had most of the same symtoms that you metioned except for the muscle loss.
I struggled with the diease for almost 4yrs before it was diagnoised. I lost not only those years but also my marraige and my home as a result.
I went to papworth hospital for the sleep study and they were fantastc. The sleep study involves just that. You attend the hospital and they place a head gear on so they can monitor the sleep pattern during the night. They take into account that you dont sleep like you do normally at home. I would also imagine that one of you would be able to stay with him at the hospital.
Then they wake you up in the morning and you have breakfast and go back to your room and they make the room all dark and you just lie there (end up falling asleep generally for narcaleptics). They do three of these tests through out the day and then you get the results.
I am not sure whether it varies for children. It maybe helpful if you contact the sleep centre direct.
Prior to going in you have to keep a sleep diary for 2 weeks on you activities day and night.
Please dont be put off by it as since being medicated I have had my life back. And its made a hugh difference, with energy and not cat nappin during the day time or at inconvienant times like dinner etc.
Naraclespy is dibilitating not only to the sufferer but also the family who watch.
Dont let him just live with it as your brother has.....
Get the help you need for him and once diagonised and medicated it will not only improve his life but yours too.
let me know what happens...
Tinyx
(muscle loss). Sleep studies are mostly just inconvenient. You spend the night in a bedroom by yourself. Staff wires your head / face with electronic sensors and they watch you sleep using an inferred camera. All the data is recorded for your doc to review. During the night the staff may have to wake you up depending on the test your doing. I just had my 2nd one in 10 years and like I said there simple for the patient, but still a pain in the ass. If your son is a child he could easily be intimidated by the wiring that goes on and spending the night in a strange place.
Best of luck to you... The sooner you know the truth the better you'll all be.