
Narcolepsy Support Group
A sleep disorder (somnipathy) is a disorder in the sleep patterns of a person or animal. Some sleep disorders can interfere with mental and emotional function. If you are having trouble falling asleep or having some other kind of sleep disturbance, this group is for you.

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I am so tired of being extremely lonely.....
I am so exhausted after work I don't have the energy to do anything.... I try and my meds have been changed around. but, now no one will ask me to do anything.. I'm scared to ask anyone (friends) wise because I really don't have any... does anyone's exhaustion and tiredness get in the way of a friendship....I guess I don't know how to make friends anymore.... please help!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
I am so exhausted after work I don't have the energy to do anything.... I try and my meds have been changed around. but, now no one will ask me to do anything.. I'm scared to ask anyone (friends) wise because I really don't have any... does anyone's exhaustion and tiredness get in the way of a friendship....I guess I don't know how to make friends anymore.... please help!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
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The tiredness and fatigue do absolutely get in the way of friendship. It's very difficult to find people that truly understand N and how difficult it can be to live with. It is very lonely, it sucks.
Are there any local groups you can join or classes you can take? Hang in there, don't give up. Andrew
OK back to reality, no harm in dreaming though. I'm very good at that :-)
Andrew
I used to feel very isolated, but now that the kids are doing school functions I have occasions to meet other moms with kids. They don't always become fast friends but sometimes things click.
The school has a cubscout group and they have a couple of annual camp-outs. I met most of my good friends through that.
The school has a mom's getaway weekend once a year without the hubbies or kids. All the moms in the school are invited but we usually only have about 12-15. We play games and sit up all night talking. It is like a slumber party I pay for the next day. We have done it for years and have many repeat moms. They all know I have to have a nap and if I don't get it... I will be sleeping through supper. They are great about it and plan their activities so I don't miss alot while they are waiting for me. They usually go on a hike or something. We also have a getaway dinner at a local restaurant once a month, also open to all the moms and not always the same people. It helps me keep in touch without feeling like we have to get on the phone every day when we don't really have time, or that we don't have to try and do everything together.
Having said all that, I don't feel the need to be social as much now as I did when I was 30, so that may have something to do with it to.
Alot of people are intimidated in crowds or busy yelling for various reasons at ballgames so if you have an occasion to go to something a little more intimate, try to go.
Andrew, what you suggest about a community - this group is the nearest we can get to it, and all-in-all i think it's a pretty good one, we're there for each other for moral support and at times most convenient, we don't have to synchronise meeting times (i'm still up at 4am cos timeclock shot to bits at moment, who else can i chat to at this time of morning), ok maybe there's no physical help because we're such a rare breed we're spread out too far, but think about it, with N even if we only lived up the road how often would we have the energy to be popping round for coffee, helping each other with shopping, gardening and stuff? i think this site is a fantastic way of supporting each other, and reach out to a lot more people than we would in a local community.
take care, each and every one of you, remember we're only a keyboard away from each other xxx
I can also relate to people telling me they don't know which one of me their going to get. The energetic one, the somber one. I really considered myself to the a paranoid scitzo and was fine with if i just knew what was wrong with me.
Remember that a friend has to understand your condition first, and few non narcs can. Try and explain to your friends what it means to have narc. If they're your friend, they'll try and accommodate more of the sedate activities we're sometimes limited to. You might want to try some of those types of pastimes as well...book clubs, renting movies, take away and t.v., stuff you can do without putting yourself or them in danger...hope this helps.
Remember this: you aren't alone, and lots of us know exactly what it feels like.