Hi, I'm new here, 27y, and diagnosed with narcolepsy just 6 months ago. I felt the symptoms ever since my teen years, but recently it progressed really fast and my wife "forced" me to finally understand what is happening to me.
I was working night shifts, with basicly one brake day each month. The work wasn't hard physicaly, but really stressfull and I was in constant pressure. My doctor prescribed me 2 types of tranquilizers, before knowing what it really was.
The constant tiredness, the cataplexy, the alucinations, sensorial and auditive, got worse. Everytime I fell asleep I instantly began dreaming, and woke up even more tired than before.
After I got diagnosed and began taking Modafinil and Venlafaxina it got much better.. in the beggining at least.
I changed works, now I only work during the day, without shifts, began having a steady routine, and my work is now more physical and not stressfull.
But the thing is, it only worked on the beggining, there are days when the energy is overwhelming, I can't even recognise myself considering the lazy slob I once was, but it only takes 5, 10 mins without moving around and it hits me again, the drowziness, my legs and arms failling.
I still don't know for sure if this is related or not, but sometimes I felt like I was in autopilot, that it was not me on control, that got better too.
And the muscle pain.. Ever since I remember everyone called me an old man because of the pain I always felt on my back and my limbs.. it got better, but now is even worse..
But like I said, my work now is much more physical, but I need to be on the move constantly, just so I don't feel it again. My coworkers constantly tell me to slow down, but I can't. So I don't know if the worsening of the pain is related or not.
So my question is, does it ever stabilizes? Or it gets always worse? I'm on 200mg a day of Modafinil, and it feels like nothing for now..
Thank you for reading!
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